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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Rota de navegação

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Roles and Responsibilities✕

Showing 5 of 87 results.

Page 2 of 18

2020

Short Guide on Patient Partnerships in Rare Disease Research Projects

Report on partnerships between scientists and patient organisations by European Joint Programme on Rare Diseases

Visit this Resource

Research Field

General
Biomedical Lab

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry
Other groups

Country

Europe

Content Type

Resource

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's

Visit this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Public/Patients
Industry

Country

Content Type

Resource

Involving patients

Toolkit of resources for involving patients in healthcare quality improvement projects by Healthcare Quality Improvement Partnership

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Public/Patients
Other groups

Country

Content Type

Resource

Patient Engagement

Report published by the World Health Organisation (WHO) with an overview of value of patient engagement and steps to take

View this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Audience

Researchers/Developers
Other groups

Country

Other countries

Content Type

Resource

Checklist for planning involvement

Tick list of things to consider when involving PPI by Versus Arthritis

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Este projecto recebeu financiamento do programa de investigação e inovação Horizon 2020 da União Europeia ao abrigo do acordo de subvenção n.º 965241.

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