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FAQs

Why are animal models used when testing the safety of a new therapy?
What role do preclinical and clinical trials play in ensuring patient safety?
Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossary

Accelerated assessment
Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Advanced Therapy Investigational Medicinal Product (ATIMP)
Advanced Therapy Medicinal Product (ATMP)
Advertising 
Antibody
Antigen
Base editors

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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
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    Page 1 of 34

    Patient and public involvement and engagement (PPIE) in advanced therapy medicinal products (ATMPs)

    This eLearning session provides an overview of patient and public involvement and engagement (PPIE). It is aimed at clinicians and researchers who work with advanced therapy medicinal products (ATMPs), and may be of interest to patients, their families and carers, and the public.
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    Organisation Type

    • Academia
    • Healthcare

    Development Stage

    • Research and Clinical Development
    • Service Delivery

    Audience

    • Researchers/Developers
    • Public/Patients
    • Other groups

    Country

    • UK

    Content Type

    • Resource

    Recommendations on Patient Involvement for Funding Institutions

    This guidance document by Rising Tide Foundation and Patvocates was developed for public and private health research funding institutions in national and international disease-specific or other settings. The document suggests standard approaches for the implementation of patient involvement from the earliest stages of health-related research.
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    Organisation Type

    • Funder
    • Third Sector/Charity

    Development Stage

    • Research and Clinical Development

    Audience

    • Other groups

    Country

    • Europe

    Content Type

    • Resource

    ATMP PPI Articles

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    Content Type

    • Article

    Patient Engagement Training and Resources Repository

    Searchable repository of public training by Patient Engagement Synapse
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    Organisation Type

    • Third Sector/Charity

    Country

    • Other countries

    Content Type

    • Repository

    Patient Engagement Resources

    Searchable repository of public resources by Patient Engagement Synapse
    Visit this Resource

    Organisation Type

    • Third Sector/Charity

    Country

    • Other countries

    Content Type

    • Repository
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