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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • PPI Basics and Benefits
  • Standards for PPI
  • Roles and Responsibilities
  • PPI Pools/Lists of Organisations
  • Knowledge Building
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Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Charity Sector
  • Industry

Country

  • Europe

Content Type

  • Repository

Patient involvement in the Committee for Advanced Therapies

Presentation slides on patient involvement in the Committee for Advanced Therapies (CAT) at the European Medicines Agency (EMA)

Research Field

  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Regulatory Body

Development Stage

  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment

Audience

  • Researchers/Developers
  • Public/Patients
  • Other groups

Country

  • Europe

Content Type

  • Resource

Patient and public involvement and engagement (PPIE) in advanced therapy medicinal products (ATMPs)

This eLearning session provides an overview of patient and public involvement and engagement (PPIE). It is aimed at clinicians and researchers who work with advanced therapy medicinal products (ATMPs), and may be of interest to patients, their families and carers, and the public.

Organisation Type

  • Academia
  • Healthcare

Development Stage

  • Research and Clinical Development
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Other groups

Country

  • UK

Content Type

  • Resource

EATRIS Patient Engagement

Resources by European Advanced Translational Research Infrastructure in Medicine (EATRIS) and their commitment to patient engagement

Research Field

  • General
  • Biomedical Lab

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • Europe

Content Type

  • Resource
2016

Patient Involvement

Resource by Genetic Alliance UK on PPI benefits and how to get involved

Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector

Country

  • UK

Content Type

  • Resource