ATMP Engage PPI Directory

Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

Patient and public involvement and engagement (PPIE) in advanced therapy medicinal products (ATMPs)

This eLearning session provides an overview of patient and public involvement and engagement (PPIE). It is aimed at clinicians and researchers who work with advanced therapy medicinal products (ATMPs), and may be of interest to patients, their families and carers, and the public.

Recommendations on Patient Involvement for Funding Institutions

This guidance document by Rising Tide Foundation and Patvocates was developed for public and private health research funding institutions in national and international disease-specific or other settings. The document suggests standard approaches for the implementation of patient involvement from the earliest stages of health-related research.

EATRIS Patient Engagement

Resources by European Advanced Translational Research Infrastructure in Medicine (EATRIS) and their commitment to patient engagement

NIH Toolkit for Patient-focused therapy development

Toolkit to help patient groups support the process of developing a treatment or cure for their disease by National Institutes of Health (NIH)