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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • PPI Pools/Lists of Organisations
  • Standards for PPI
Showing 5 of 49 results.
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Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Charity Sector
  • Industry

Country

  • Europe

Content Type

  • Repository

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Industry

Country

  • UK

Content Type

  • Resource

Involving patients

Toolkit of resources for involving patients in healthcare quality improvement projects by Healthcare Quality Improvement Partnership

Research Field

  • Other

Organisation Type

  • Third Sector/Charity

Development Stage

  • Service Delivery

Audience

  • Public/Patients
  • Other groups

Country

  • UK

Content Type

  • Resource

Supporting patient and public involvement in industry-led research Guidance for charities

Report for charities working with industry by Shared Learning Group

Research Field

  • Pharmaceutical

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment

Audience

  • Charity Sector
  • Industry

Country

  • UK

Content Type

  • Resource
2019

Planning patient and public involvement in surgical trials

Guide for chief investigators to plan effective PPI to enhance recruitment and retention into clinical trials, by Nuffield Department of Primary Care Health Sciences - Oxford University

Research Field

  • General

Organisation Type

  • Academia

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • UK

Content Type

  • Resource