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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • PPI Basics and Benefits
  • Standards for PPI
  • Roles and Responsibilities
  • PPI Pools/Lists of Organisations
  • Knowledge Building
Showing 5 of 130 results.
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EATRIS Patient Engagement

Resources by European Advanced Translational Research Infrastructure in Medicine (EATRIS) and their commitment to patient engagement

Research Field

  • General
  • Biomedical Lab

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • Europe

Content Type

  • Resource
2016

Patient Involvement

Resource by Genetic Alliance UK on PPI benefits and how to get involved

Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector

Country

  • UK

Content Type

  • Resource

NIH Toolkit for Patient-focused therapy development

Toolkit to help patient groups support the process of developing a treatment or cure for their disease by National Institutes of Health (NIH)

Research Field

  • General
  • Biomedical Lab
  • ATMP/Gene Therapy Development

Organisation Type

  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Public/Patients
  • Charity Sector

Country

  • North America

Content Type

  • Resource
2020

Short Guide on Patient Partnerships in Rare Disease Research Projects

Report on partnerships between scientists and patient organisations by European Joint Programme on Rare Diseases

Research Field

  • General
  • Biomedical Lab

Organisation Type

  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Public/Patients
  • Charity Sector
  • Industry
  • Other groups

Country

  • Europe

Content Type

  • Resource
2008

ISSCR Patient Handbook on Stem Cell Therapies

Report on stem cell therapies aimed at patients by International Society for Stem Cell Research

Research Field

  • Other

Organisation Type

  • Third Sector/Charity

Audience

  • Public/Patients
  • Other groups

Country

  • North America

Content Type

  • Resource