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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • Strategies/Statements/Policies on PPI
  • Budgeting/Compensation
  • Project Planning
  • How/Who to Recruit
  • Using Technology
  • Training
  • Maintaining/Supporting PPI
  • Communication/Plain Language/Glossaries
Showing 5 of 138 results.
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EUPATIConnect

Bringing EUPATI Patient Experts and researchers together

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Public/Patients
  • Industry

Country

  • Europe

Content Type

  • Resource

HTA4Patients

EUPATI HTA4Patients -Bringing Health Technology Assessment (HTA) closer to patients

Organisation Type

  • Third Sector/Charity

Development Stage

  • Health Technology Assessment

Audience

  • Public/Patients
  • Charity Sector

Country

  • Europe

Content Type

  • Resource

Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Charity Sector
  • Industry

Country

  • Europe

Content Type

  • Repository

Patient and public involvement and engagement (PPIE) in advanced therapy medicinal products (ATMPs)

This eLearning session provides an overview of patient and public involvement and engagement (PPIE). It is aimed at clinicians and researchers who work with advanced therapy medicinal products (ATMPs), and may be of interest to patients, their families and carers, and the public.

Organisation Type

  • Academia
  • Healthcare

Development Stage

  • Research and Clinical Development
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Other groups

Country

  • UK

Content Type

  • Resource

Recommendations on Patient Involvement for Funding Institutions

This guidance document by Rising Tide Foundation and Patvocates was developed for public and private health research funding institutions in national and international disease-specific or other settings. The document suggests standard approaches for the implementation of patient involvement from the earliest stages of health-related research.

Organisation Type

  • Funder
  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Other groups

Country

  • Europe

Content Type

  • Resource