Voretigene 'one year on' - NHS England blog post
New life-extending treatment for NHS patients - Roy Castle Lung Cancer Foundation
Patient and Public Perspectives on Advanced Therapies - Advanced Therapy Treatment Centres (ATTC)
ATMP Engage: PPIE resources
The following resources for researchers, patients, and communicators were collated by the ATMP Engage partners. They are shared here in the hope that they may of use to other groups interested in patient involvement and engagement.
Case studies
Toolkits
How to: patient engagement in early discovery and pre-clinical trials - Patient-Focused Medicines Development
Advanced Therapies Skills Training Network - Advanced Therapies Skills Training Network
Patient Engagement in clinical trials -MD Group
Patient engagement training (online) - Patient Engagement Management Suite
Research and articles
A comprehensive systematic review of published literature on patient perspectives of ATMPs (Review) - Nature
Health System readiness for ATMPs (White paper) – Advanced Therapy Treatment Centres Network (ATTC Network)
How gene therapy overcame high-profile failures - Science News
A bright future for genomics and gene therapy in the UK - Health Services Journal
Ground-breaking rezearch launches into patient experiences of cell therapies (Press release 2018) - University of Birmingham
Patient and public information and resources
T Cells - Made of Stronger Stuff (BBC Sounds)
Genomics and precision medicine in oncology – Health Services Journal
Better education needed to give patients better understanding of gene therapies, new review highlights - Midlands and Wales Advanced Therapy Treatment Centres (MW-ATTC)
Patient and Public Engagement in the development of cell and gene therapies – FutureNHS
The Gene Home (Bluebird Bio) - Bluebird Bio
Transporting Advanced Therapies and what they are (animation) - Advanced Therapy Treatment Centres (ATTC Network)
What are ATMPs - ATMP Sweden
What are ATMPs (Image) - ATMP Sweden
Introducing Cell and Gene Therapies - Advanced Therapy Treatment Centres (ATTC Network)
Webinars and information sessions
Who are we?
The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.
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