ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
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    Page 3 of 34

    Learning for involvement

    Searchable repository by National Institute for Health Research (NIHR) for learning and development of public involvement in health and social care research.
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    Organisation Type

    • Funder

    Country

    • UK

    Content Type

    • Repository

    List of PPI Journals

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    Content Type

    • Journal

    EATRIS Patient Engagement

    Resources by European Advanced Translational Research Infrastructure in Medicine (EATRIS) and their commitment to patient engagement
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    Research Field

    • General
    • Biomedical Lab

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Identifying/Prioritising Patient Need
    • Research and Clinical Development

    Audience

    • Researchers/Developers

    Country

    • Europe

    Content Type

    • Resource
    2016

    Patient Involvement

    Resource by Genetic Alliance UK on PPI benefits and how to get involved
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    Research Field

    • General

    Organisation Type

    • Third Sector/Charity

    Development Stage

    • Identifying/Prioritising Patient Need
    • Research and Clinical Development
    • Regulatory Approval
    • Health Technology Assessment

    Audience

    • Researchers/Developers
    • Public/Patients
    • Charity Sector

    Country

    • UK

    Content Type

    • Resource

    NIH Toolkit for Patient-focused therapy development

    Toolkit to help patient groups support the process of developing a treatment or cure for their disease by National Institutes of Health (NIH)
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    Research Field

    • General
    • Biomedical Lab
    • ATMP/Gene Therapy Development

    Organisation Type

    • Other Organisation

    Development Stage

    • Identifying/Prioritising Patient Need
    • Research and Clinical Development
    • Regulatory Approval
    • Health Technology Assessment
    • Service Delivery

    Audience

    • Public/Patients
    • Charity Sector

    Country

    • North America

    Content Type

    • Resource
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