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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • Evaluating/Recording PPI Impact
  • Feedback to/from PPI
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Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Charity Sector
  • Industry

Country

  • Europe

Content Type

  • Repository

Recommendations on Patient Involvement for Funding Institutions

This guidance document by Rising Tide Foundation and Patvocates was developed for public and private health research funding institutions in national and international disease-specific or other settings. The document suggests standard approaches for the implementation of patient involvement from the earliest stages of health-related research.

Organisation Type

  • Funder
  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Other groups

Country

  • Europe

Content Type

  • Resource
2021

The impact of patient and public involvement in the UK Coronavirus Immunology Consortium

Report showcasing PPI involvement in Immunology research by British Society for Immunology (BSI)

Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Public/Patients

Country

  • UK

Content Type

  • Resource

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Industry

Country

  • UK

Content Type

  • Resource

Involving patients

Toolkit of resources for involving patients in healthcare quality improvement projects by Healthcare Quality Improvement Partnership

Research Field

  • Other

Organisation Type

  • Third Sector/Charity

Development Stage

  • Service Delivery

Audience

  • Public/Patients
  • Other groups

Country

  • UK

Content Type

  • Resource