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Patient Involvement

People living with medical conditions are experts in their own experience and needs. Collaboration between researchers and people affected by conditions is an important part of ensuring that new therapies align with patients' needs and priorities. There are different ways in which patients and people affected by conditions can become involved in gene and cell therapy research.

Genetic Alliance UK provides a good overview of patient involvement in research.

You may also be interested in our guidance for researchers about how to involve patients in research.

Resources & Factsheets