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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Fil d'Arianne

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Case Studies✕

Showing 5 of 66 results.

Page 4 of 14

NIHR PPI panels guidance notes

Guidance on how to set up a PPI panel by the National Institute for Health Research (NIHR)

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2015

Public Involvement in Clinical Trials

NIHR eeport / guidance on how to involve PPI in clinical trials

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2009

NIHR INVOLVE Exploring impact: public involvement in NHS, public health and social care research

NIHR report promoting PPI involvement, especially the impact they can have on a number of factors

Visit this Resource

Research Field

General

Organisation Type

Funder

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2019

How Can Patient Organisations Work With NICE?

Webinar and slide deck on patient involvement in highly specialised technologies. Published by NICE / Genetic Alliance UK

View this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Regulatory Body
Third Sector/Charity

Development Stage

Regulatory Approval

Audience

Public/Patients
Charity Sector

Country

Content Type

Resource

Patient and public participation in commissioning health and care: Statutory guidance for clinical commissioning groups and NHS England

Slide deck by NHS England outlining guidance for patient and public involvement in NHS commissioning

Visit this Resource

Research Field

Other

Organisation Type

Healthcare

Development Stage

Service Delivery

Audience

Public/Patients
Charity Sector
Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Ce projet a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne, dans le cadre de la convention de subvention n° 965241.

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