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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Fil d'Arianne

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

PPI Basics and Benefits✕
Roles and Responsibilities✕

Showing 5 of 101 results.

Page 10 of 21

2019

Being Inclusive in Public Involvement (PI) in Health Research

Guidance on how to be inclusive by EDIS - Equality, Diversity and Inclusion in Science and Health

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers

Country

Content Type

Resource

Clinical Trials Accelerator Platform Commercial Involvement (Patient and Public Involvement)

Guidance on involving PPI in clinical trials by Cystic Fibrosis Trust (CF Trust)

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

Patient and Public Involvement

What PPI is by the Cystic Fibrosis Trust (CF Trust)

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Public/Patients

Country

Content Type

Resource

2018

Guidance for Researchers: Feedback, PPI Feedback from researchers to PPI contributors

Guidance document on providing feedback by Centre for Research in Public Health and Community Care (CRIPACC), University of Hertfordshire

Visit this Resource

Research Field

General

Organisation Type

Academia

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

2020

Top tips for involving patients in research

Webpage outlining tips for involving patients by Cancer Research UK

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Ce projet a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne, dans le cadre de la convention de subvention n° 965241.

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