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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

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ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

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Page 6 of 35

2013

Building Research Partnerships

Report on shared learning on involving PPI in health and social care research by Macmillan Cancer Support

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Involving patients

Toolkit of resources for involving patients in healthcare quality improvement projects by Healthcare Quality Improvement Partnership

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Public/Patients
Other groups

Country

Content Type

Resource

2022

BSGCT public and patient engagement series

Online seminar series to provide a lay introduction to cell and gene therapy by the British Society for Gene and Cell Therapy (BSGCT)

Visit this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Audience

Public/Patients

Country

Content Type

Resource

Patient Engagement

Report published by the World Health Organisation (WHO) with an overview of value of patient engagement and steps to take

View this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Audience

Researchers/Developers
Other groups

Country

Other countries

Content Type

Resource

2021

Involving people with muskuloskeletal conditions in shaping local services

Guidance on how to involve PPI in service delivery by Versus Arthritis

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Other groups

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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