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FAQs

What is gene and cell therapy?
What are ATMPs, and where do they fit into gene and cell therapy?
Why are animal models used when testing the safety of a new therapy?
What role do preclinical and clinical trials play in ensuring patient safety?
Why are some conditions more suitable for gene and cell therapies than others?
There is an approved treatment available for my condition - why can't I receive it?
How to look for approved medicines?
How are medicines developed and approved?

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Glossary

Accelerated assessment
Adeno-associated virus (AAV)
Adenovirus
Adult stem cells
Advanced Therapy Investigational Medicinal Product (ATIMP)
Advanced Therapy Medicinal Product (ATMP)
Advertising 
Antibody
Antigen
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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

PPI Directory

PPI Themes
Research Field
Organisation Type
Development Stage
Audience
Country
Content Type
  • Feedback to/from PPI✕
Showing 5 of 43 results.
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Patient Engagement Resource Centre

The Patient Engagement Resource Centre is developed by EATRIS (the European Infrastructure for Translational Medicine) and EPF (European Patients’ Forum), together with affiliated partner EATG (European Aids Treatment Group).
Aiming at translational researchers, this platform contains selected relevant public resources to help researchers understand the basics of patient engagement, and guide them through the different phases of patient engagement, from planning to conducting and evaluating.
Visit this Resource

Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical
  • ATMP/Gene Therapy Development

Organisation Type

  • Third Sector/Charity
  • Other Organisation

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers
  • Charity Sector
  • Industry

Country

  • Europe

Content Type

  • Repository

Patient and Public Involvement in Research

Parkinson's UK toolkit of resources supporting PPI in Parkinson's
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Research Field

  • General
  • Biomedical Lab
  • Pharmaceutical

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development
  • Regulatory Approval
  • Health Technology Assessment
  • Service Delivery

Audience

  • Researchers/Developers
  • Public/Patients
  • Industry

Country

  • UK

Content Type

  • Resource

Checklist for planning involvement

Tick list of things to consider when involving PPI by Versus Arthritis
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Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • UK

Content Type

  • Resource
2017

Guidance for feedback to PPI contributors

Parkinson's guidance on how to give feedback by email
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Research Field

  • General

Organisation Type

  • Third Sector/Charity

Development Stage

  • Identifying/Prioritising Patient Need
  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • UK

Content Type

  • Resource
2019

Planning patient and public involvement in surgical trials

Guide for chief investigators to plan effective PPI to enhance recruitment and retention into clinical trials, by Nuffield Department of Primary Care Health Sciences - Oxford University
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Research Field

  • General

Organisation Type

  • Academia

Development Stage

  • Research and Clinical Development

Audience

  • Researchers/Developers

Country

  • UK

Content Type

  • Resource
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