Directory of Patient Organisations for Rare Diseases

Related topics:
Ethics and Society Patient Involvement

Orphanet have created a database of patient organisations for patients living with rare conditions, to help you connect with support.

Directory of Patient Organisations

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Related pages

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Orphanet: The portal for rare diseases and orphan drugs

Resource
Person with questions

Do you have a decision to make around your own healthcare, or the healthcare of a loved one?

Factsheet
Current and Potential Uses Generic Logo

What conditions can currently be treated using gene and cell therapy?

Factsheet
Related Topics Current and Potential Uses Cell Therapy Gene Therapy Unproven Treatments Factsheets
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