Directory of Patient Organisations for Rare Diseases

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Ethics and Society Patient Involvement

Orphanet have created a database of patient organisations for patients living with rare conditions, to help you connect with support.

Directory of Patient Organisations

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Related pages

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Orphanet: The portal for rare diseases and orphan drugs

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Person with questions

Do you have a decision to make around your own healthcare, or the healthcare of a loved one?

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Current and Potential Uses Generic Logo

What conditions can currently be treated using gene and cell therapy?

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Sujets associés Current and Potential Uses Cell Therapy Gene Therapy Unproven Treatments Factsheets
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