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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Fil d'Arianne

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Showing 5 of 171 results.

Page 18 of 35

2019

Researchers' experiences of Patient and Public Involvement

Videos and transcripts from researchers talking about experiences with PPI by Healthtalk online

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Other groups

Country

Content Type

Resource

2018

Engagement with patient organisations

Statement outlining how GlaxoSmithKline (GSK) engages with patient organisations

Visit this Resource

Research Field

Pharmaceutical

Organisation Type

Industry

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Content Type

Resource

2020

Improving patient access to gene and cell therapies for rare diseases in Europe.

Report for the Rare Impact project - improving access to ATMPs by European Organisation for Rare Diseases (EURORDIS)

View this Resource

Research Field

ATMP/Gene Therapy Development

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Europe

Content Type

Resource

2016

PREFER patient preferences project

PREFER project by European Patient Forum (EPF)

View this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development
Regulatory Approval
Health Technology Assessment
Service Delivery

Audience

Researchers/Developers
Industry

Country

Europe

Content Type

Resource

2020

Health Outcomes Observatory (H2O) project

Project by European Patient Forum (EPF)

View this Resource

Research Field

General
Biomedical Lab
Pharmaceutical

Organisation Type

Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients
Charity Sector
Industry

Country

Europe

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Ce projet a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne, dans le cadre de la convention de subvention n° 965241.

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