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ATMP Engage PPI Directory

The PPI Directory contains patient and public involvement (PPI) resources for developers of cell and gene therapies, including toolkits, guidelines, advice, templates and case studies.

Fil d'Arianne

ATMP Engage
PPI Directory

PPI Directory

Title

PPI Themes

PPI Themes
- PPI Basics and Benefits
- Standards for PPI
- Roles and Responsibilities
- PPI Pools/Lists of Organisations
- Knowledge Building
- Strategies/Statements/Policies on PPI
- Budgeting/Compensation
- Project Planning
- How/Who to Recruit
- Using Technology
- Training
- Maintaining/Supporting PPI
- Communication/Plain Language/Glossaries
- Case Studies
- Evaluating/Recording PPI Impact
- Feedback to/from PPI

Research Field

Research Field
- General
- Biomedical Lab
- Pharmaceutical
- ATMP/Gene Therapy Development
- Other

Organisation Type

Organisation Type
- Funder
- Academia
- Healthcare
- Regulatory Body
- HTA
- Industry
- Third Sector/Charity
- Other Organisation

Development Stage

Development Stage
- Identifying/Prioritising Patient Need
- Research and Clinical Development
- Regulatory Approval
- Health Technology Assessment
- Service Delivery

Audience

Audience
- Researchers/Developers
- Public/Patients
- Charity Sector
- Industry
- Other groups

Country

Country
- UK
- Europe
- North America
- Other countries

Content Type

Content Type
- Resource
- Journal
- Repository
- Article

toolkit
partnership
NHS

Showing 5 of 174 results.

Page 8 of 35

2021

TwoCan Associates Publications

List of publications relevant to PPI between 2002 - 2020, by TwoCan Associates

Visit this Resource

Research Field

General

Organisation Type

Other Organisation

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2019

Involving patients and the public in research

Review of PPI by THIS Institute - Cambridge University and RAND Europe

Visit this Resource

Research Field

General

Organisation Type

Academia
Third Sector/Charity

Development Stage

Identifying/Prioritising Patient Need
Research and Clinical Development

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2021

Working with patients, service users, patients and the public

Statement of how Kings fund involves the public by The Kings Fund

Visit this Resource

Research Field

General

Organisation Type

Third Sector/Charity

Development Stage

Service Delivery

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

2021

Seldom Heard project - Stop, look and listen to me

Report on engaging people with learning disabilities and communication challenges by The Challenging Behaviour Foundation

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Audience

Researchers/Developers
Public/Patients

Country

Content Type

Resource

Training courses

Training for making research more inclusive and diverse by The Centre for Ethnic Health research

Visit this Resource

Research Field

Other

Organisation Type

Third Sector/Charity

Audience

Researchers/Developers

Country

Content Type

Resource

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Who are we?

The Advanced Therapy Medicinal Products Patient and Public Involvement and Engagement Working Group (ATMP Engage) brings together UK-based stakeholders with an interest in ATMPs to discuss and collaborate on PPIE activity.

Learn more about ATMP Engage

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Ce projet a été financé par le programme de recherche et d'innovation Horizon 2020 de l'Union européenne, dans le cadre de la convention de subvention n° 965241.

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